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Good news! We are now "allowed" to use "unapproved" medical procedures.

Posted by  $  CBJ 5 months, 3 weeks ago to Legislation
20 comments | Share | Flag

But only for a "life-threatening" illness.
Still, it's a step in the right direction.
SOURCE URL: http://www.chicagotribune.com/business/ct-right-to-try-drug-bill-20180522-story.html


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  • Posted by  $  jbrenner 5 months, 2 weeks ago
    When my biomedical engineering daughter and I heard this announced about a week ago, we cheered. Both of us are the tissue engineering field, and this will expedite things in our field.
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  • Posted by  $  allosaur 5 months, 2 weeks ago
    Unlike Not So Great Britain, Americans are free to take babies out of the country in a last ditch effort to save a dying kid's life.
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    • Posted by  $  WilliamShipley 5 months, 2 weeks ago
      Not always. There have been cases such as the nightmare that Justina Pelletier went through. She was diagnosed by a doctor at Tufts with mitochondrial disease. While visiting Boston, she had an episode and her parents took her to Boston Children's Hospital.

      Boston Children's decided that she didn't have mitochondrial disease (as pretty much a snap judgement) and that the parents were abusing her by taking her to doctors. They got the court to award them guardianship and locked her on a psych ward.

      It took a long battle to get her out.

      https://www.bostonglobe.com/metro/201...
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      • Posted by RevJay4 5 months, 2 weeks ago
        I recall that case. I remember being totally pissed that the frkn hospital had that kind of power. The ensuing battle to get the child back into the family was painful to watch.
        Thank God she was reunited with her family.
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  • Posted by scojohnson 5 months, 2 weeks ago
    There is a legal problem with some of this - FDA approval absolves the physician/hospital/pharmaceutical of malpractice liability if the medication is properly prescribed.
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    • Posted by  $  blarman 5 months, 2 weeks ago
      As long as the patients are warned about the potential side-effects, I don't see a problem.

      I would also point out that claims of "malpractice" in the medical field are what are one of the primary contributing factors to rises in healthcare insurance and especially doctors' insurance rates. Those most hard hit are in OB/GYN.
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      • Posted by scojohnson 5 months, 2 weeks ago
        I don't disagree at all - just saying where the culture came from.

        Having been on the defending side of a couple of lawsuits where I had done nothing wrong - being "right" doesn't matter in our shitty legal system. You are still going to be devastated by legal fees and the loser will just be a turnip that files for bankruptcy, not even worth the time and cost to counter-sue.

        We need to throw in a 1-year imprisonment sentence for filing a malicious or bullshit lawsuit. The financial negative is just not enough because they have adequate protections for them.

        If you are a producer in society, you pay. If you are a moocher, society finds 10,000 excuses for you. End of story.
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        • Posted by scojohnson 5 months, 2 weeks ago
          I was actually sued in employment court by a little bimbo that I fired for not showing up for work for several days. Her excuse was 'a spider bite' - but the spider bite didn't keep her from going water skiing and getting horrible sunburns- it just kept her from sitting at a desk and answering a phone. So, after 4 days, I fired her in accordance with our 3-day no-show, no-job policy. She had zero sick leave and zero vacation time and I didn't actually hire her to begin with, she came as a package deal with one of our top sales guys - he was banging her and the condition was to give her a "job".

          Still didn't matter, she still sued for wrongful termination. It went nowhere, I settled for actually paying her through the 4 days she skipped plus 2 weeks of 'severance', just to make it go away because the attorney cost was higher for every court appearance than to pay her lazy ass for 2 weeks. It certainly puts a bad taste in your mouth for the legal system though. It's always financial blackmail in the form of what is cheaper - the cost of defense or the settlement. Everyone knows it, that's why they do that stuff. There needs to be jail time for bringing a frivolous case and losing.
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        • Posted by  $  blarman 5 months, 2 weeks ago
          I have heard several times people on this forum advocate for a loser-pay court system as a way to address all the frivolous lawsuits. I'm not a lawyer, but they made some very convincing arguments.
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  • Posted by  $  exceller 5 months, 3 weeks ago
    It is not new, really. My cousin was put on a cancer treatment regimen that was still pending before the FDA. It is applied only when no other, approved medication shows efficiency. It did not help her.

    It may be conceived as good news for those with no hope, but on the other hand, each case may be viewed as another data point for the manufacturer for Phase 3 clinical trial.
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    • Posted by MrSmiggles 5 months, 2 weeks ago
      Many people are on non-approved FDA drugs but they had to go through a long process to get FDA approval to do so. Now that process isn't necessary. It's funny really. States have enacted Right to Die policies but a Right to Try and Live policy hasn't been done until now. Bravo to the government for once.
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    • Posted by  $  5 months, 3 weeks ago
      The legislation slightly eases the administrative burden on patients, through bypassing the FDA in the decision-making process. It's a small step that hopefully will lead to bigger ones.
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  • Posted by freedomforall 5 months, 3 weeks ago
    Doesn't go nearly far enough.
    Cancer patients still have to let oncologists destroy what little health they have before they can legally get alternative treatment in the US. By then it's too late for them. The legal "treatments" have made it all but impossible for any alternative treatment to save their lives because the immune system has been destroyed by approved "cut, burn, and poison" treatments. Approved cancer treatment is primitive torture.
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    • Posted by scojohnson 5 months, 2 weeks ago
      It varies quite a bit - medical centers with specialization in cancer treatment will have better outcomes than the few oncologists in the general hospital type of thing. Unfortunately, health care coverage doesn't span across state lines... so if you are a Kaiser patient in California, unless you can write a really big check, you won't be going to the Mayo Clinic in Rochester, MN.

      My sister-in-law was diagnosed with lymphoma, had a year or so of alcohol ablation therapy (every 3 months or so) at Mayo Clinic, been cancer free now for almost 10 years. No poisoning, no radiation, etc. http://www.washdiplomat.com/index.php...

      If a different person goes into the revenue-oriented hometown general hospital, to be honest, they are going to stand on the efficacy of traditional treatments as a reason to go to "plan A" first - because they can rack up millions in health care bills. I know it sounds horrible, and I'm not saying it's the truth, but I'm saying it is a significant factor. How much do you get paid for injecting a pint of ethanol into someone's body, versus radiation & chemotherapy at $5,000 a bottle for years? Statistically, they probably have similar outcomes, and certainly, a separate relative of mine recently passed after 4 years of being completely filled with cancer (like 50 tumors), plus liver & lymphatic cancer - and he was given 3-6 months to live originally. They did extend his life with a couple of good years before the last 2 horrible ones - but it certainly took its toll on him. Observing the difference was mind-blowing though.

      Other reasons - Mayo and similar specializing hospitals don't accept Medicare or Medicaid as payment (in-full), so they are also not bound by what the Centers for Medicare & Medicaid tell them is an acceptable treatment - so no governing policy obstructions for the doctors.

      There are others around the country, I'm most familiar with Mayo, but being willing to give CMS the finger on Medicare & Medicaid sets them free from the politics of medicine.
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      • Posted by freedomforall 5 months, 2 weeks ago
        Accepted treatments for almost all oncologists in the US are as you said- unethically biased toward what makes the largest profits and power for everyone in the chain of treatment- govt medicare beureaucrats, pharma companies, hospitals, doctors, insurance companies (who just chip the pot as bills go higher) with no regard whatsoever to what is best for the patient. It's a system designed to extract the maximum amount of money from every patient and stretch out their miserable lives until the insurance runs out. It is unforgivable and completely disgusting.
        You might be interested in the studies mentioned in this video, too.
        Sulforaphane and Its Effects on Cancer, Mortality, Aging, Brain and Behavior, Heart Disease & More
        https://www.youtube.com/watch?v=zz4YV...
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  • Posted by  $  Olduglycarl 5 months, 2 weeks ago
    Notice that say: "Drug"...Not a "natural" substance...one with no adverse reactions abd does No harm.

    That's goobernment for ya...keepin an eye out for their crony operatives...
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  • Posted by DeanStriker 5 months, 2 weeks ago
    All this may seem good, but it's merely one grain of sand lost within a huge beach. There are so many, and so insidious. The only way of winning these kuttke battles is getting rid of GOVERNments along with their Rulers.
    That's gonna take the coming Great Collapse, nothing else is feasible or even posible.
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