A friend of mine ran into a similar situation here in the US when his daughter was misdiagnosed and he stated he wanted to go to another physician to get a second opinion the hospital began immediate legal proceedings to prevent him from taking him from their care because they were certain they were right. The first hospital was wrong and he saved his child by going to another. If any medical authority has determined that nothing else can be done why complain if the parents still want to try something else? If I were told I couldn't touch my dying child with out being arrested for assault someone would need a doctor soon after.

Makes me think of 23 and me owned by the wife of Sergy Brin the Google founder (the largest data privacy capture company). People freely offer family history and their DNA . The clown company wants to marry your DNA to googles metadata history of you. It gets worse as they want to tie your data into the Medical insurance system.
An algorithm will write your prescription or not.

Questioned and answered. This exact situation seems to be getting more common as time goes on. How many times does the public's nose need to be rubbed into situations like this before they realize the foolishness of socialized anything?

In a country that bans conservative talk show host Michael Savage for listing him as a terrorist, the Bolshevik bozos of baby-owning Britain strikes again.

Yes, we are cattle. And, yes, they want to kill babies. Took me about 15 years of seeing this kind of thing happening until the truth hit me like a ton of bricks. And, I live in America. In England it would have taken me less than half that long...

There may be additional factors here that "The State" is considering.....I suspect that if the child survived it would be disabled and cost the government a lifetime of care. In addition to not wanting to pay for any more care....they also don't want to pay for all the follow on care should he live.

This is what happens when a society decides that it will be a ward of the state. The state makes your decisions.

The statement that I would have challenged is this:

"All the experts agree that it will not assist Alfie to subject him to further tests in order to identify a diagnosis."

Just how many experts did you consult? What were the experts' areas of expertise? What if I got my own experts and every one of my experts contradicted all of your experts?

I lost a full term baby during childbirth when my (now ex-) wife had a seizure on the delivery table and almost died herself.

I totally agree with Chad; someone tells me I can't touch my own baby, I guarantee all hell would break loose.

On one hand, anyone should be able to pursue whatever treatment they chose. On the other hand, this is a waste of resources. Their own, they should be free to waste. The same effort could save gobs of others. The couple should just move on.