It should NOT be this hard to get my son an insulin pump!!

Posted by LetsShrug 10 years, 1 month ago to Government
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A personal story.... (I put this under Government category...none of the other categories applied. Can we add a "bocare horror story" category? We'll probably need it soon.)
SOURCE URL: http://slugtaggart.blogspot.com/


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  • Posted by Non_mooching_artist 10 years, 1 month ago
    The hoops you've had to go through, when this should be a simple process, which should have been handled by the Dr's office, but everyone involved dropped the ball, which meant you've had to do their jobs for them... UNBELIEVABLE!!! Wow, give o'care a round of applause!!
    This sort if bull is inexcusable. There is no accountability, no genuine effort exerted by those whose job it is to perform these tasks and see that they are actually done. How have you not gone postal? Hang in there. Keep us posted. }-(
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  • Posted by khalling 10 years, 1 month ago
    Just amazing. I have heard horror stories about this with other med devices as well but they don' t take this long to resolve. This is aserious medical issue for them to be dicking around like this. Unfortunately it looks like you 'll need luck on this one since competency isn 't part of the equation.
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    • Posted by $ jbrenner 10 years, 1 month ago
      As someone in biomedical engineering and whose daughter is starting it in college next year, I can tell you what a damper Obamacare put on the medical device industry. A 3% tax on all devices! The subject comes up monthly in my classes.
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  • Posted by Snoogoo 10 years, 1 month ago
    From my experience in health care pumps retail for about $6,500 (Insurance charge). They wholesale for about $700 on the high end. The margin helps pay for all of the bureaucracy you are dealing with. That makes perfect sense right? (I'm being sarcastic of course)
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  • Posted by $ kathywiso 10 years, 1 month ago
    Wow LS... This is true insanity. I am really hoping for a good outcome to this... The pump is excellent in helping to control, although not entirely. I know your son is doing everything he can to keep his levels under control... That should be the number one qualification for an insurance company to approve... What an unbelievable ordeal you are being put through :-(
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  • Posted by iroseland 10 years, 1 month ago
    a bocare horror story category seems like a very useful thing. Perhaps just healthcare in general? I am probably on the short list of folks who know exactly what you are going through, Ok, I don't need a pump for my son.. But, I will be having the pump discussion with my endo in a few weeks. Yes, I am looking pretty close at the medtronic with the cgms built in. I had been thinking about waiting for the fully closed loop pump that will probably ( hopefully ) be available when the next next gen pumps are released in a year or three.. But, heh.. I woke up at 440am a few weeks ago with a sub 20 blood sugar and my wife feeding me honey. That pretty much sold me on the idea of a pump that could at least shut off dosing when the detected blood sugar has dropped below threshold. Used to be that getting approval for a pump was a nightmare in and of itself. But, thanks to Lantus and Humalog ( manual Basal and Bolus ) dosing average A1Cs have been dropping all over the place. Of course along with the lowing of the A1Cs is the increasing odds of low blood sugar events. Anyone that claims that lows are not a problem has their head up .. Umm.. Anyways, lows are bad the insurance folks use nocturnal low events to trigger the ok for pump+cgms which along with the current level of control means that getting approval is at least not the nightmare it used to be. Of course now we have had the billing for it turned into a new special kind of Kafka nightmare.
    In the meantime, your son is having control issues.. I know how that goes as well. Especially when working out is added to other stress makers. I had a long discussion with my endo about the gym and targets. Sadly, even a pretty good endo kind of sucks at providing much advise on this.. So, he suggested that I need to double down on me using me as a science experiment. More data is more good.. Workouts that have a good and much sought after burn effect can/will/do occasionally mess me up late at night or the next morning. So, since I spend _a_lot_ of time on the road, in the air and living out of suitcases or hotel rooms by myself. I have also spent a lot of the last couple of years being fairly paranoid about inconveniently times lows making things more of a mess than is needed. So, I have spent some fairly serious time working on self conditioning to automatically take action when the early symptoms of a low start to manifest.

    Oh.. and finally.. lets all keep in mind that ocare/medicade/medicare are not built to handle chronic illness. So, as a rule they all pretty much suck at it.
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    • Posted by 10 years, 1 month ago
      Well let me know how things work out for you. I hope it's not as insane as my attempt. Take care of yourself. (That's what I always say to my son.) :)
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      • Posted by iroseland 10 years, 1 month ago
        I am still on the fence on the pump thing. But the Endo has a really good relationship with Medtronic. Which helps a great deal. He has a good record of getting folks pumped up. 😃. But at the same time the research clinic downstairs would like me to sign on for a study for a generic version of Lantos. They like me for studies because I go above and beyond on getting them useful data. I like the studies because money cannot buy the level of treatment provided on the long term drug studies. I just finished an 18 month one with Lilly providing my everything. If it goes well there will be a new gen4 long acting that only needs injecting every 3days. So, I may sign on for this one since I want to live in a world with more cheaper long acting choices. I was also on human trials for cebix ( c-peptide ) replacement. I cannot wait for it to go to market as the stuff was pretty much magic.
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      • Posted by $ jbrenner 10 years, 1 month ago
        Talk to someone at The University of Miami. Their diabetes program is the world's best. I learned that when I had a small biosensor companies about 10 miles away. FYI, the University of Miami is not a state school, but their researchers do mooch off the government teat. I am one of the RARE professors who doesn't, at least since I read AS a few years ago. That has made work a little harder, but not like it was for AS's characters.
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        • Posted by iroseland 10 years, 1 month ago
          you might find this interesting. Since my Endo is upstairs from the research folks. The Endos are running a private practice, they also run the research company downstairs. They do 0 work for stuff coming out of the University system. They even point out that the public schools have nearly nothing that is going through phased trials to move on to the product phase. They are however really good at working directly with the drug and device companies. One of the nice parts with this arrangement is that when I am talking to the research endo I am also talking to my usual one. The nice part for them is that they know really well what normal looks like for me, and then know very well how to talk to me.
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